Medical discovery of problem

In the fall of 2008, I made several trips to the local doctors in Wenatchee to find out about my lack of energy.  Initially I thought I had pneumonia as I could hear this rattling in my lungs when I would lay down to sleep.  Early exams showed there was fluid around the lungs, but it was not pneumonia.  Further investigation with the heart showed an EKG and the doctors were convinced I was either having or had a very damaging heart attach.   I was checked into the emergency room where they placed me on a bunch of monitors to watch the heart.   Investigations showed I had an unusually large left ventricle chamber (wall was 70% thicker then normal) that gave cardiologists concern.  I was scheduled for a heart catheterization the following day.  A simple procedure where a long instrument is moved through a major vein in the leg to the heart.  Dye was released to tracked to watch for blocked arteries along the outside of the heart. Everything looked good.  A week or so after the procedure, the Cardiologist told me it was still a mystery as to what was going on.   He recommended that I seek another source that could provide better tools.  I had scheduled a visit in Seattle with Swedish Hospital, a Dr. Olsen soon into the New Year.   When we saw Dr. Olsen he was convinced that I had an issue with the lungs, a pulmonary hypertension, that could be cleared up by late spring.  Though he did say, "There is a rare possibility what you have is an unusual heart disease, It does not warrant mention at this time because the possibilities are so remote."  Those words would come back to haunt us in a few weeks.  

 During the holidays, I noticed I was loosing a lot of muscle mass in my arms and chest.  My face also was starting to look a little gaunt.  All this time I was seeing a steady decrease in my energy level.