Today is my grandson Jude’s third
birthday. He has been counting down the
days with the excitement and anticipation that any three year old would. While I have seven other grandchildren that I
very much love and care for, Jude and I share a birthday together. It was three years ago (well actually
tomorrow, Sep 11) that I received my heart transplant. People that receive transplants figure they
have been given a new life and will use the date of their transplant as a new
birthday. So I guess if you figure in the two stem cell transplants I have had,
plus my heart transplant and my original birthday, I am aging at four years to
every 365 days. That must be the reason
why I am looking like an old dog more and more every day. Well Happy Birthday Jude. I am glad to share this day with such a fine
young boy.
Since my last posting the doctors
have been helping to bring my blood pressure up to a point where I am safe. I will run the risk of passing out should the
levels get much lower. The heart
transplant has made it hard for me to maintain a healthy level of blood pressure.
I tell people that when you are transplanted
with a new heart, the plumbing is hooked up but not the wiring. All nerves to the heart are severed and are
not reconnected through transplant. The
main series of sensory nerves that maintain communication between the brain and
heart run through the vagus nerve. Before I received my transplant, my body would
communicate with the heart when there was a drop in blood pressure from
standing up. This is done automatically. We do not realize our heart kicks in a few
more beats to pump blood through our body to maintain a healthy blood pressure. A transplanted heart, while keeps you alive,
it does not provide this service. Also
my adrenal gland is not producing the hormones I need to maintain a healthy
blood pressure. I was told that many
stem cell transplant patients will experience damage to their adrenal gland as
a consequence of the chemo given to destroy the bone marrow. It may be that with additional time this will
heal and begin to function normally again.
Changes to my medications should address this.
We told Jude about the day he was born and how receiving a call that you were getting your heart was a big part of that day. We love you. (I love the last post, too! We miss you a lot.) Happy second birthday.
ReplyDeleteHi Rick and Rose!!!! Thank you Rick for the awesome birthday message on my birthday also! I really appreciated it and it was so fun to tell Kelly the stories about the Hatchery Committee birthday parties! What a hilarious picture we must have been to the hotel staff with our hats on. Happy late birthday to cute little Jude.
ReplyDeleteMuch much love,
Ali